Tomorrow morning, Greer and I will drive over to Duke for her 10th laser treatment. We have traveled almost 600 miles to seek the best possible care for our precious baby. Our insurance provider in Alabama has gone above and beyond to make this journey possible....to give our baby just what she needs. What a blessing that is! I work hard for a great company and they provide amazing insurance that seeks to serve my family. God bless America!
We have had a wonderful weekend with the Enseys here in Raleigh, and have been so impressed by the opportunity we have found here in North Carolina. Dr. Burton has a great plan and hope that Greer's birthmark has the potential for a lot more fading. He and his staff are confident and capable, and we were blessed to find them. We want to keep coming back till he makes her birthmark disappear. We feel that God has placed us in the best possible hands, with the best possible hosts here in North Carolina.
The passing of today's Healthcare Reform Bill is very disheartening to me. It could mean terrible things for babies born with Port Wine Stains. I feel like Greer was born in a blessed time. She was born mere months after research proved that early treatment of PWS was beneficial. Because of that, she benefitted from early, aggressive treatment. She saw incredible fading before she was even six months old. She is hopefully going to complete serial treatments before the new healthcare plan effects our benefits. We thank God for that! Even with this great opportunity, we feel as if we are in a race against time. She has a ways to go. Dr. Burton feels that she needs several more laser therapies to reach her maximum fading. I am afraid that we won't get there before Obama's plan goes into effect. We are desperate to give our baby every opportunity to erase a potentially debilitating birth defect that Our Current Government deems merely "cosmetically unfortunate". I am counting on our Great God to overcome this, and I beg you to read this position statement from our point of view.....
Let's give babies like Greer a chance at the best life possible! Pray that something changes quickly and that this current plan is modified. Pray for a miracle for these babies, for there are so many less fortunate than we.
He's our all boy, athletic, Daddy loving, amazingly messy, school adoring, people pleasing, ultra sensitive, fruit craving, mercifully giving, bed hopping, dangerously destructive, absolutely precious first born.
She's our extremely funny, big hearted, completely dramatic, very talkative, nurturing, terribly sassy, independent, fashion forward, chocolate craving, brown eyed, Mommy helping, sorta sneaky, beautifully stunning second born!
5 kind words:
I am with you girl! I was infuriated last night at the comments made by many political figures, especially Al Sharpton. But what really made me think was when I considered that the constitution affords us the 'right' to life, liberty and the pursuit of happiness. I would guess that healthcare falls under the pursuit of happiness category....my point is that pursuit is an action word. Happiness is handed out, it is pursued and worked for! Now, I'm off my soapbox! Praying for wisdom in this disappointing time and know that God has sweet Greer in his hands and knew all of this would come to pass :) Love you!
I am totally with you too. I am very disappointed by this vote as well and what it may mean for our little Sophie Kate. I have never wished our situation on another human being but if any of them could experience what we do on a daily basis they would know that this "reform" will only make it more difficult for us to get the proper care and supplies for our babies. I take comfort that God knew that all of this would happen and He is still in ultimate control. I know he will provide us a way to take care of our little girls. Thinking of y'all this week and offering up prayers on your behalf to the One True God.
I've already been praying about this, now I have another reason to dislike this whole thing :( I'm so sorry it is going to effect Greer and your family so much :(
continuing to pray...
I really don't understand why the health care passed. It is effecting so many people in a negative way.
Megan, I just found your blog and your stories about Greer are so touching. She is a such a cutie and I pray that she continues to be able to receive her treatments.
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